tag:blogger.com,1999:blog-11024105.post8704089019746770385..comments2023-11-03T00:19:31.712+13:00Comments on Saving my Sanity ...: CFS Awareness DayKerryhttp://www.blogger.com/profile/01829070558793881064noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-11024105.post-72275517847876242532008-05-19T23:08:00.000+12:002008-05-19T23:08:00.000+12:00I feel so uncomfortable when people say I look wel...I feel so uncomfortable when people say I look well. <BR/><BR/>Sometimes they are being nice. They know I feel rubbish but want to make me feel better.<BR/><BR/>Sometimes it's just a social niceity and it's not worth kicking up a fuss.<BR/><BR/>Sometimes it makes me hold my breath and wonder - am I misrepresenting myself to the world? Am I as ill as I say I am when they see me doing the things I say I can't (showered and dressed and walking around and chatting and going out). But they don't see the following days/week when I pay for the front I put on.<BR/><BR/>Sometimes, as blunt and saddening as the truth can be - it seems better than to hide it and suffer alone.<BR/><BR/>Oooh - that turned into a long comment!! Sorry :o)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-11024105.post-63446644963065727802008-05-13T13:01:00.000+12:002008-05-13T13:01:00.000+12:00Susan here. Thanks so much for the kind words. I...Susan here. Thanks so much for the kind words. I don't have CFIDS/ME myself, but I know someone who does, and I get so tired of other people thinking this is just something he can push through. I'm hoping the song gets through to people like that.Unknownhttps://www.blogger.com/profile/03422657999189137884noreply@blogger.comtag:blogger.com,1999:blog-11024105.post-73604471473614005412008-05-13T10:42:00.000+12:002008-05-13T10:42:00.000+12:00Kerry I'm so glad you posted this. Uncanny that we...Kerry <BR/>I'm so glad you posted this. Uncanny that we got this the same year. I don't know how you raise a child. More power to you! I never was able to work after it hit me. Mine was one of the hard hits and took me down completely, complete with all the neurological symptoms from the get-go. I'm better now , too, but too dizzy still to consider working. My writing keeps me going. I get this 'you look so GOOD' , too. People don't understand that because we're tired of being sick that we try even harder to take care of our appearance in some attempt at normality.<BR/><BR/>Take good care.<BR/><BR/>Pris<BR/>Songs to a midnight skyPrishttps://www.blogger.com/profile/03970753027686923295noreply@blogger.com